I better get another post in for this month! Otherwise I will have only one for July!
I should really update how things are going with Kaylee. They are great! I have been playing detective with her though. Kaylee's immune system is "exquisitively sensitive" as her nurse practitioner in NY told me last week. For instance, if Kaylee deviates from her limited diet right now with a piece of pizza or a hash brown from McDonald's (yes we had quite a time after that) she has potty problems and an impossible attitude and her stim behaviors return.
We have also figured out that some of her allergy extract shots were not helping but hurting her progress. I wasn't sure what to do and I prayed for God's wisdom and started removing ones I felt might be the culprit and I was right! Oh the Lord doth give wisdom liberally to those who ask! (James 1:5)
If Kaylee has a good day with no dietary issues and her shots are all ok, she is a dream child. Well behaved and so talkative and easy. I have wanted to shout from the rooftops about how well she is doing! If I were to take her to a doctor today I believe that she would no longer have the autism diagnosis. She does not fit the DSM IV criteria!
Our only issues now is her catching up to her peers and making sure we keep her immune system cooling down and modulated.
What a far cry from a year ago.
I tell everyone I know about what we are doing. I hope that people will listen when I tell them my child is being healed! And there are many others! Why won't people listen? I don't understand. Living with autism has been a nightmare, one of the worst things that could happen to my child. It is harder to live with it than to try and get her better. Yes this road has been hard, all of these treatments but we are on the other side now.
I try not to get discouraged. Not everyone will hear and want to do what we are doing for Kaylee, and that's okay. But really, no one has wanted to listen.
And I feel much sorrow out there for the children who have to suffer not only physically but emotionally and mentally too.
Well thats not the best writing I have ever had, but that's what's on my mind tonight. God bless you with wisdom and strength!
That is such a wonderful update!!! I don't know why people don't listen. I was one of those people before our son was diagnosed. You can't get discouraged though. It's kind of like the Christian walk -- live the way you are called to live and people will eventually take notice. They will see the difference themselves.
ReplyDeleteHi Jen,
ReplyDeleteI missed you on Sunday. I know that Joey was sick. Hope he's feeling better.
I was in the nursery and I continue to notice the changes in Kaylee. What a difference in her from when you first attended Lighthouse! In fact, if someone new came to work in the nursery, I do not believe they would ever guess that she had been diagnosed with autism.
Keep up the good work! Just keep telling people your story, give all the praise to God, and eventually you will reach people--one at a time!
Have a good day!
Cindy